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Huber Family

Monday, May 20, 2013

Great and Marvelous

I will always fondly remember my days singing in the choir at North Love Baptist Church in Rockford, Il.  Pastor Dan Outler was our music minister and a great friend indeed.  He always held a high standard in what the choir and congregation would sing to praise and honor the Lord and I would like to think that his influence lives on in my life today.  The inspirational times in that choir are some of the best memories in my life.  When I took the kids up to see the Grand Canyon (about 3.5 hrs from our home away from home) this past Thursday, I was reminded of a song we used to sing from Majesty Music if I recall titled Great and Marvelous.  God truly is great and marvelous.  His creation, ways, judgments, laws, and will are too.  I see His greatness as I behold the beauty of the Grand Canyon and I see His greatness as I experience and see His work in my life as well as in the lives of so many others.  I am totally unworthy to be blessed with a wife who loves God with all her heart.  She has just recently made friends with a young woman from India who claims that Joni is her first friend in America.  Joni has a gift for truly caring about others and making them feel important.  I remember her sister Dee Dee also having the same gift. I am also so unworthy to have 12 children who absolutely love one another and enjoy doing things together.  God blessed me with a daughter (Katherine) who worked everything out for her 6 younger siblings to make a 15 hr trip to see their mother.  Not too many people get to experience what it's like to take trips with all those young ones.  And even less are able to say how much they love being with their brothers and sisters during and after a trip like that.  She is amazing!
She has flawlessly run the household in our absence for 7 weeks now. God blessed me with a daughter(Kristalyn) who joyfully made meals, shopped, washed laundry and kept things in order as Joni and I spent the day at the clinic.  God blessed me with children (Brenton and Benjamin) who make things fun for their younger siblings and show them that they are valued. It was such  good therapy to see them playing in the hotel pool together.  God blessed me with children (Kaylianna, Christian, Justin) who wanted everyone at the clinic to know that they were thankful for them taking care of their mommy. Their notes to the staff were an absolute hit.  All these things are miracles from God.  Yes, it was great to see the creation wonders of God portrayed in the Grand Canyon, but His wonders are manifested in the lives of people all around us.  Without Him we can do nothing.  Without Him there is no good.  Without Him our life would consist of what we could get out of it.  As for me, I can say that He has granted me fulness of joy.  I am surrounded by His greatness and goodness whether it be to look over the span of the Grand Canyon or look into the eyes of my smiling children.  The Lord is my Shepherd I shall not want.

Joni has been responding well to her treatments as of late.  The most troubling for her at this point is the high dose vitamin C IV therapy.  She will be doing more of these after next week if we are able to stay for her entire protocol.  Right now she has completed 10 of the 12 IPAC treatments.  These were brutal when she started them.  It would take her at least 6 hours to recover to the point where she wanted to get up out of bed but now she gets an hour or two of rest and is able to function quite well.  Her terrible headaches and nausea are far less frequent.  She is still very tired and does not have the brain function improvement we are desiring.  All in all we are very encouraged.  We know that our home protocol will be rigorous and expensive but we are ready to embrace God's plan for us.  I am learning so much here.  Its easy to learn this stuff because I was always interested in the medical field even though I don't even like to give our animals shots.  Others can do the nitty gritty and I'll stick to storing up all the brainy stuff.  No pun intended there. (shots-stick, get it) That was for my kids who are constantly rolling their eyes at my "marvelous" humor.

Some key finds for Joni have been:  chronic lyme disease and several co-infections, parasites, very low VitD levels, very low magnesium levels, energy cell level virtually 0, adrenal function poor to name a few.  It's hard to believe someone with such a proper diet and lifestyle (and a good husband) could be so ill but that is what lyme disease does. Well, I guess you could scratch the good husband part. I was checking to see if you were still with me.  Our plan is to finish out 4 more weeks here in Scottsdale but we don't have the money for that at this time.  We came with enough money for 1 week of treatments and we have been here 7.  That doesn't include the port procedure, an ultrasound to eliminate the possibility of an abdominal aortic aneurysm, an mri and ct scan of the brain to eliminate anything other than lyme that could be causing Joni's neurological issues.  We have quite a story to tell but we want it to be complete before we give the details.

Praise God from whom all blessings flow, Praise Him all creatures here below,  Praise Him above ye heavenly hosts, Praise Father, Son and Holy Ghost, Amen.  My kids often hear this admonition from me and I pass it along to you this evening- Finish Strong!  It not only will be worth it all when we see Jesus, it is worth it all now.  Look around and see the goodness and greatness of our Lord and sing with me Great and Marvelous are Thy ways  Lord God Almighty....who shall not fear Thee and bring glory to Thy name...Thou alone art holy, Thou alone are worthy....

4 Comments:

  • At 9:57 PM, Anonymous Anonymous said…

    Are you able to cash a check if we send one?
    Lori VH

     
  • At 11:36 PM, Blogger Hubers said…

    Lori,
    Thank you for thinking of us. Yes, there are branches of our bank here so we are able to cash checks. RICK

     
  • At 2:20 AM, Blogger Hubers said…

    Lori,

    You probably have our address in Texas so it would be easier for you to send it there. Either way works for us. Katherine can deposit it there or we can do it in Scottsdale.

     
  • At 9:06 AM, Blogger Unknown said…

    We are praying for you all! Thanks for the updates!

     

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